A Fat Chance

I suffer from intestinal lymphangiectasia, an extremely rare disorder which gave me a chance to change my life. A fat chance.

Name:
Location: Pisa, Tuscany, Italy

Medical student (Psychiatry), online and face-to-face facilitation, CoP practitioner, writer for and about mental illness (mainly in psychiatric rehabilitation, volunteerism and ICT) but also facilitation nonprofit and CoPs, person with mental illness in recovery.

Sunday, February 26, 2006

Snapshots of My Story

This is a long story. I have no formal day to give you as a starting point, so I'll set an arbitrary one for the first day reality broke thru full force.

June 1st 2004:
Sitting in the bathroom, my head spins. The pain is so much I can't even see the tyles in front of me, just the cracks between them. "I need to pass the brush into them" I think "Ok, when the pain goes away". What a weird intestinal bug, so painful. Painful shivers radiate from my belly, up to my neck and face, down to my feet plants. Right after that, the shits.

July 22nd 2004:
This is my first day out of the house since when my 12-16 daily shits began. I can't believe I'm venturing out. "I can't miss her, I can't miss her" That's all I can think.

February, 4th 2005:
I thought I was past the shits, I have felt better since September. But here they are again. Maybe it will go away again. It must be my gastritis or something, hence the nausea.

April, 8th 2005:
Curled up in the couch, in a ball of pain, I'm watching the Pope's funeral. "What is the meaning of this pain, Lord? What do I have to learn from it?". I wanted to go to Rome, but am still shitting over 10 times a day. I'm, again, afraid of getting out.

May, 12th 2005:
I'm afraid of what I'm shitting. It doesn't look "regular" to me, all that yellow stuff... my God I'm getting rotten. I need to do something. I thought I was getting better because I would shit less, and yet, here I am with all that weird stuff. My God.

August, 14th 2005:
Now I'm really scared. The pain, again, that stuff again. I showed it to mom, who turned white and said: "You have to call your brother's specialist, and you have to do it now".

September, 28th 2005:
The darn thing has a name and the name is intestinal lymphangiectasia.

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