A Fat Chance

I suffer from intestinal lymphangiectasia, an extremely rare disorder which gave me a chance to change my life. A fat chance.

Name:
Location: Pisa, Tuscany, Italy

Medical student (Psychiatry), online and face-to-face facilitation, CoP practitioner, writer for and about mental illness (mainly in psychiatric rehabilitation, volunteerism and ICT) but also facilitation nonprofit and CoPs, person with mental illness in recovery.

Thursday, June 22, 2006

I kid you not!

I went to McDonald and had a McRoyal Deluxe sandwich, together with 400 ml tea (a "medium" one), 150 ml kefir and 6 pills of soy lecithin.

Well guys, NO PROBLEM.

Of course my stools still have visible fat in them, and a lot. But, NO SYMPTOMS.

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Tuesday, May 30, 2006

Experimenting Probiotics and Prebiotics on Myself #2

I played here and there :)

At the moment I am on:
FOSs: 7 grams/day (prebiotic - 15 days)
VSL#3: 1 envelope a day (probiotic - 12 days)
Yomoplus: Bifidobacterium longum BB46, Bifidobacterium bifidum BB02, Bifidobacterium BBR8, Lactobacillus rhamnosus GG (probiotic - 5 days)

I have tried for 6 days Bifidobacterium lactis BB12, then I ran out of it and didn't replace it (bad mistake, tomorrow I will re-start it). I have taken Lactobacillus johnsoni La1 for 3 days during which I had increasing number of runs to the toilet. It has the same impact on my healthy mate (Pat). I am unresolved on whether to stop it now or give it some more time. I also had a couple of painful bowel air colics. I don't know whether it's due to the lack of BB12 or the introduction of La1....

I started Saccharomyces boulardii today.

In any case, I tolerate the fat a lot better, as I thought I would. I still see lots of it in my stools, but I have fewer episodes of diarrhea (like 2 a day) even when I eat without weighting everything (and possibly above 3%).

More experiments tomorrow (when I'll get my kefir grains)....

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Sunday, May 21, 2006

Experimenting Probiotics and Prebiotics on Myself #1

From all the previous entries, one can detect how I did my homework. Reason for that is, I got a bowel bug that impaired my life for sixteen days, delaying my dental surgery and creating a lot of malnutrition (and consequent muscular pain and edema).

I presently am on:
FOSs: 7 grams/day (prebiotic - have used it for a week)
VSL#3: 1 envelope a day (probiotic - have used it for 4 days). VSL#3 is composed of:
Streptococcus thermophilus
Bifidobacterium breve
Bifidobacterium longum
Bifidobacterium infantis
Lactobacillus acidophilus
Lactobacillus plantarum
Lactobacillus casei
Lactobacillus bulgaricus


I have tried fructose (diabetic sugar) for 4 days but would get me bloated, so I discontinued it yesterday (and am already improving).

Just today I added a functional yogurt having Bifidobacterium lactis BB12. The rationale behind that is, I seem to do great on FOSs, which feeds bifidobacteria. So, I gathered I lack bifidobacteria more than lactobacilli and Bifidobacterium lactis BB12 is not encompassed in the VSL#3 mix, thus I added it.

I might be adding Lactobacillus johnsoni La1 and Lactobacillus casei immunitas later on. I also plan to add Saccharomyces boulardi and see how it goes.

I keep my diet religious about:
1. drinking at least one cup of skim milk a day (lactose feeds bifidobacteria and lactobacilli! If we don't drink milk, or drink lactose-free one, chances are we aren't helping them help us!);
2. eat a little salad twice a day (I empirically noticed that some kind of greens are better for me than others.. radicchio and lettuce are dangerous to some degrees, but rocket, baby spinach, baby mix, spring mix are not);
3. try not to have "carb meals" alternated with "protein meals". On the contrary, I try to always eat balanced: some bread/focaccia, together with some proteins (fish, eggs, or cheese) and some greens at every meal.

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Saturday, April 08, 2006

Gas Colic

Sometimes, you can get a gas colic, just like babies'. In this case the pain is different from usual IL's, in that it:
1. is localized around the navel and below the stomach,
2. gets far worse when you stand up
3. also worsens when you tighten your abdominal muscles

What can you do to make it go away?

Lay on your left side, because that will relax your abdominal muscles and diminish the pain. This position will also help you release gas without straining (that is, it will help painlessly).

Use a hot water bottle that will keep contractions in check.

If you can, sleep and allow the bowel to do its stuff.

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Intestinal Lymphangiectasia Damange Control

What to do when the sh*ts hit? There are many things that I found helpful and I'm going to list them here so that every surfer stumbling on this site can benefit from them.

When the whole thing starts and you get nauseated, you can lay down on your left side: that will prevent vomit and ease your nausea. Because of its anatomy, the Gubaroff valve will keep your stomach closed.

When the pain hits, put a hot water bottle on your tummy: heat relieves the cramps you undergo due to diarrhoea.

After loosing all those liters of fluids, rember to rehydrate your body! In order to do it correctly, you have to weight how much you loose.

If you don't have oedema, you can drink isotonic solution (1 liter, 9 grams of salt, 30 gr of sugar) and use the equation for burnt people to establish at which pace to rehydrate (half of the total losses in 8 hours and the other half in the next 16 hours). If you do have oedema, add a protein mix (such as Meritene) to the whole solution.

Stop eating for a while. Your diarrhoea is of the osmotic type, which means it will go on as long as there is food in your bowel. Therefore, fast for some number of hours, usually 12, meanwhile living on isotonic solution and solution of water and sugar.

Re-start getting eating those foods that block your bowel. It's pretty personal, but mine are canned tuna, french bread and cous cous, together with unheated skim milk/dairies.

Eat foods with a very low fat content for a couple of days before restarting pushing toward a higher percentage. My personal threshold is 3%, and I eat food below 1% for a day or two after an "episode".

If you are eating a fattier meal, take some simethicone (Mylicon): that will prevent unabsorbed fats from being used as food by bacteria, with consequent production of gas that will overstretch your bowel's wall (which is already full of oedema by itself!) and accelerate your bowel movement speed.

Taking 1 teaspoon of lecithin per meal helps emulsifying the fats, thereby enhancing absorption and diminishing the symptoms. A food that can help you hugely, because of its content in phospholipids (emulsifiers) is egg.

The way you eat is also very important.
1. try to eat MAINLY polyunsaturated fatty acids: they are absorbed via a protein, not through the "fat" part of cell membranes the way saturated fats are and create far less pain for you because they put less pressure on your lymphatics;
2. avoid transfats COMPLETELY: they enhance diarrhoea even in healthy individuals, so.. bake your own tarts, cakes, muffins, etc.
3. don't give up on making tasty food, there are zillions of ways you can substitute, for example, butter in bakery or use spices. Just learn, learn, learn

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